Useful Links


www.epilepsymatters.com (Canadian Epilepsy Alliance site)
www.epilepsy.com
www.epilepsyfoundation.org
www.seizuretracker.com
www.endtrashtalk.com (for teens)

The Canadian Epilepsy Alliance www.epilepsymatters.com

The Canadian Epilepsy Alliance (CEA) is a Canada wide network of grassroots organizations dedicated to the promotion of independence and quality of life for people with epilepsy and their families, through support services, information, advocacy, and public awareness.

The Canadian Epilepsy Alliance includes rural, urban, local, and provincial incorporated Epilepsy Associations from coast to coast in Canada. We currently have member associations in Newfoundland and Labrador, Nova Scotia, Quebec, Ontario, Manitoba, Saskatchewan, Alberta, and British Columbia.

Epilepsy Associations Coast to Coast

To find the nearest Association to you, go to www.epilepsymatters.com and click on the appropriate spot on the map of Canada. Please note that New Brunswick and Prince Edward Island are currently served by The Epilepsy Association of Nova Scotia.

Purple Day – The Global Day of Epilepsy Awareness
www.purpleday.org

Purple Day is an international grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26th annually, people in countries around the world are invited to wear purple and host events in support of epilepsy awareness. In 2011, people in dozens of countries (on all continents except Antarctica) participated in Purple Day, and the number of participants grows each year.

The Canadian League Against Epilepsy
www.clae.org

The Canadian League Against Epilepsy (CLAE) is an organization of medical professionals and basic scientists whose goal is to improve epilepsy care and awareness, and encourage basic science and clinical research in epilepsy. Members include physicians, basic scientists, nurses, neuropsychologists, neuroradiologists and other medical professionals, and CLAE works closely with the lay organizations including the Canadian Epilepsy Alliance.

The Canadian Neurological Sciences Federation (CNSF)
www.ccns.org

The Canadian Neurological Sciences Federation (CNSF) is an umbrella organization representing four member societies. These organizations form the ‘membership’ of the CNSF and share a common interest in the functions and disorders of the brain and nervous system. These societies are:

The Canadian Neurological Society
The Canadian Association of Child Neurology
The Canadian Neurosurgical Society
The Canadian Society of Clinical Neurophysiologists
Information on each may be found on the CNSF website.

The Anita Kaufmann Foundation
www.akfus.org

The Anita Kaufmann Foundation (AKFUS) is the only foundation of its kind -- solely dedicated to educating the public about epilepsy and seizures .Its mission is to implement Anita’s vision by changing society’s attitude towards people with epilepsy. The Anita Kaufmann Foundation is based in New Jersey; along with The Epilepsy Association of Nova Scotia, the Anita Kaufmann Foundation is part of the Global Purple Day Planning Committee.

Montreal Neurological Institute
www.mni.mcgill.ca

Epilepsy Therapy Project
www.epilepsy.com/epilepsy_therapy_project

International Bureau for Epilepsy
www.ibe-epilepsy.org

International League Against Epilepsy
www.ilae-epilepsy.org

Epilepsy Foundation of America
www.epilepsyfoundation.org

American Epilepsy Society
www.aesnet.org

British Epilepsy Association
www.epilepsy.org.uk

UK Epilepsy Society
www.epilepsysociety.org.uk

AboutKIdsHealth.ca -- The Hospital for Sick Children’s Paediatric Health Care Site

http://aboutkidshealth.ca/En/ResourceCentres/Epilepsy/Pages/default.aspx

AboutKidsHealth.ca is a not for profit, evidence-based paediatric health care site. Its goal is to provide children’s health care information that reaches as many people as possible in multiple languages in Canada and around the world.
AboutKidsHealth.ca is targeted to parents, children, and first-tier health care providers. It offers information about everyday health and complex medical conditions.

MedicAlert – No Child Without Program

The Canadian MedicAlert® Foundation is a charitable organization which is the leading provider of emergency medical information services linked to customized medical bracelets and necklets. We are pleased to be able to offer MedicAlert memberships to students (from age 4 to their 14th birthday) through the No Child Without® program in select schools. The financial support of the Government of Canada and Lions Clubs allows students to receive the MedicAlert membership for FREE.
www.nochildwithout.ca

Lions Foundation of Canada – Seizure Response Dogs Program

Since 1983, the lives of over 1200 men, women and children from the age of 8 to 84 have been enriched by the services of specially trained Dog Guides from Lions Foundation of Canada. These Dog Guide "handlers", from as far east as St. John's, Newfoundland, and as far west as Victoria, BC., have experienced the enrichment of their lives through newfound freedom and independence with the companionship and assistance of a devoted Dog Guide partner.

The site includes information about Seizure Response dogs, and includes an application form.

www.dogguides.com

Support Organizations

Lennox Gastaut Syndrome
www.lgsfoundation.org

Dravet Syndrome
www.dravetfoundation.org
www.idea-league.org

Tuberous Sclerosis
www.tscanada.ca

Turner Syndrome
www.turnersyndrome.ca

Infantile Spasms
http://www.infantilespasms.com

Print Material

Booklet series
www.edmontonepilepsy.org/about/booklets.html

Magazine
http://www.epilepsyadvocate.com/epilepsy-support/article-archive.aspx